depletion syndrome and is considered to be only one of 16 babies
worldwide with this disease. The parents of the baby Chris Gard and Connie Yates have been in a
long legal battle to save their baby who is suffering from a serious
human rights that will compel a couple to allow their sick baby to die.
mitochondrial conditions, including the nucleoside treatment Charlie’s
parents have been fighting for.
have the right to continue to provide medical treatments for their son
or if he should be allowed to die.
their son’s genetic condition rather than allow him to die as doctors
suffering and distress in pursuit of treatments that were unsure.
treated since October, has told the parents that there is “no rush” to
remove Charlie’s life support.
Charlie, they wouldn’t have to follow it exactly. The discussion and
planning will take some days to work out.
Charlie, while the rest will be put into a charity for other children
with similar mitochondrial conditions “so that nobody else ever has to
go through what we have.”
medications have been proven to work and we honestly have so much belief